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BEGIN:VEVENT
DTSTAMP:20260611T222317Z
DTSTART;VALUE=DATE-TIME:20180830T130000
DTEND;VALUE=DATE-TIME:20180830T140000
SUMMARY:Dr Emma Kirby\, UNSW Scientia Fellow : Exploring palliative and e
 nd of life care: relations of care\, lived experience and choice in an A
 ustralia context
TZID:Europe/London
UID:20180830-8a17841a6533e54401654763bcd36990@warwick.ac.uk
CREATED:20180817T101723Z
DESCRIPTION:Dr Emma Kirby is a UNSW Scientia Fellow in the Centre for Soc
 ial Research in Health\, University of New South Wales\, Australia\, and
  a recent Australian Research Council DECRA Fellow. Dr Emma Kirby is a s
 ociologist\, focused on experiences of health and illness. A main area o
 f focus lies in exploring palliative and end-of-life care and interperso
 nal relationships in health care\, to reveal how social interactions sha
 pe care and support during illness. She has attracted over AUD$2m in com
 petitive research funding\, and has over 50 publications in leading jour
 nals including Social Science & Medicine\, Sociology of Health & Illness
 \, Qualitative Health Research\, Journal of Palliative Medicine\, and th
 e Internal Medicine Journal. She is currently leading a three year proje
 ct which will offer policy and practice-relevant data to improve our und
 erstanding of the role and significance of informal carers in end of lif
 e settings. Exploring palliative and end of life care: relations of care
 : lived experience and choice in an Australian context With an increasin
 g number of Australians dying every year\, developing a better understan
 ding of the lived experience of patients\, families and clinicians is cr
 itical. This is particularly pertinent given broad shifts in healthcare 
 provision and responsibility\, and with an ageing population. Drawing on
  a range of projects undertaken within a research team at UNSW Sydney\, 
 I focus in particular on the dynamics of formal versus informal support\
 , and their respective and complex roles in end of life contexts. Here I
  use qualitative data from several case studies\, funded by the Australi
 an Research Council and focused on transitions to and through palliative
  care\, cancer survivorship\, and informal care\, to explore the lived e
 xperience of the end of life from a range of stakeholder perspectives. F
 irst\, drawing on studies of family carers of patients with advanced can
 cer\, I discuss some of the everyday complexities of the formal-informal
  care nexus\, highlighting the ways by which hope\, denial\, and stoicis
 m among families inflect doctors’ decision-making and treatment trajecto
 ries in palliative and end of life care. Second\, drawing on qualitative
  interviews and photo elicitation\, I examine how living with cancer is 
 constructed\, understood and valued by those approaching the end of life
 \, including constructions of time and relation. Third\, I discuss the w
 ays by which social context and social relations shape decision-making a
 nd discourses around health care choice for people living with cancer. F
 inally\, I outline typologies of responses to cancer diagnosis (and ofte
 n poor prognosis)\, to recontextualise diagnosis as inherently social in
  character. These discrete but interrelated projects seek to highlight c
 oncealed relations of suffering\, burden and opportunity within contempo
 rary caring relations in Australia and beyond. All welcome
LOCATION:
CATEGORIES:
LAST-MODIFIED:20180817T101723Z
ORGANIZER;CN=Lucinda Sidbury:
END:VEVENT
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