ࡱ> ~}U@ bjbj u6668nD3666))))M)*.Q3$5R8u3 ""  u33  ")  ) Vb(@&) 67 .( ^)|303(x$9e ^$9&)$9&)86: ($666u3u3D School of Health and Social StudiesThe University of TVCoventry CV4 7AL United KingdomTel: (024) 7652 4140Fax: (024) 7652 4415Email: j.m.read@warwick.ac.uk CAN WE COUNT THEM? SCOPING DATA SOURCES ON DISABLED CHILDREN AND THEIR HOUSEHOLDS Consultations with Stakeholders The limitations of national data on disabled children and their families are widely recognised (Gordon et al. 2000; Office for National Statistics (ONS) 2004; Prime Ministers Strategy Unit (PMSU) 2005). There are substantial existing administrative, census, and survey data on childhood disability that provide valuable insights into the lives and circumstances of disabled children and those closest to them. There is, however, an absence of reliable current national quantitative data on prevalence, trends and the socio-demographic characteristics of disabled children and their households. As a consequence, our understanding of this important group within the population is limited in fundamental ways. Our research team at the University of TV is currently carrying out a study, funded by the Economic and Social Research Council, to scope existing quantitative national and regional data sources and to consider their strengths and limitations in order to inform the future development of more robust data. Because we recognise that definitions of disabled children vary, at this point in the study we are interested in scoping data sources that include information on children with a wide range of conditions, impairments and learning disabilities. As part of this study we are consulting with a wide range of stakeholders about their experiences and opinions regarding data sources on disabled children and their households. We will only report stakeholders views and opinions anonymously and confidentiality about sources of opinion will be maintained. If you have experiences of or views on these issues, please contribute to the consultation by answering the questions listed on the following page. Many thanks, Dr Janet Read, Professor Nick Spencer and Clare Blackburn School of Health and Social Studies University of TV Coventry, CV4 7AL Email: j.m.read@warwick.ac.uk CAN WE COUNT THEM? SCOPING DATA SOURCES ON DISABLED CHILDREN AND THEIR HOUSEHOLDS Consultations with Stakeholders Name: Organisation: Position/Job title: Telephone number: Email address: I understand that by returning this proforma I am giving consent to participation in the project and I understand that the information I give will reported anonymously. Please add your comments below each question taking as much space as you need. We are interested in gaining as much as possible from your experience. Which, if any, sources of national, regional and local data do you use on disabled children and their households (e.g. Census data, General Household Survey data, SEN Regional Partnership data, Looked After Children data, Hospital Episodes Statistics)? For what purposes do you use these data on disabled children and their households? For each of the data sources you have identified, please tell us what you regard as their strengths and weaknesses as sources of information on disabled children and their households. How useful are these data sources for the purposes for which you need this information? Please tell us how easy you find it to use these data sources: comment on barriers to use, as well as user friendly features. Are there data sources you know of and would like to use but are not able to? Please explain why this is the case. What is the most useful data currently available on disabled children and their households? Please give your reasons. What data on disabled children and their households do you think is currently needed but not available? For what purposes will data on disabled children and their households be needed in future and how could this most usefully be generated? Please make other observations or comments you think are important about current and future data collection on disabled children and their households. Thank you for your contribution. 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